About Neurofibromatosis
Understanding the genetic disorder that affects millions worldwide and why research funding is critical.
What is Neurofibromatosis?
Neurofibromatosis (NF) is a genetic disorder that causes tumors to form along nerves in the skin, brain, and throughout the body. These tumors are typically non-cancerous but can cause significant medical complications and affect quality of life.
NF1 (Neurofibromatosis Type 1)
The most common form, affecting 1 in 3,000 people worldwide
NF2 (Neurofibromatosis Type 2)
Less common but often more severe, affecting hearing and balance
Schwannomatosis
The rarest form, characterized by painful tumors
Impact & Statistics
People affected by NF1
Inheritance rate
Symptom severity
Research need
Why Research Matters
Developing new treatment options for tumor growth
Understanding genetic mechanisms to prevent NF
Improving quality of life for patients and families
Finding potential cures through innovative science
Common Symptoms & Challenges
NF affects each person differently, but these are some of the most common challenges faced by patients
Tumor Growth
Benign tumors can grow along nerves throughout the body
Vision Problems
Optic nerve tumors can affect vision and eye health
Learning Challenges
Some patients experience learning disabilities or attention issues
Bone Deformities
NF can cause skeletal abnormalities and bone growth issues
Emotional Impact
Physical symptoms can lead to social and emotional challenges
Pain Management
Tumors can cause chronic pain that affects daily activities
NF Resources & Support
Learn more from leading organizations dedicated to NF research and patient support